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Parents Blogs

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A Mothers Persistence Pays Off, by Julie

By Parents Blogs

My daughter is nine years old. She was born five weeks premature. As a baby and toddler, she did seem to take a bit longer to catch onto things. But I didn’t really think much of it at the time. It wasn’t until Preschool and Kindergarten that I realized that something was going on. My older daughter has ADHD and a math learning disability, so I wondered if Jessica had the same thing. Was it that or an anxiety disorder, or what was it? I knew there was something. But I could never pinpoint what it was. Read More

NVLD Teen Jock, by Shanna

By Parents Blogs

This past summer, after encouragement from a good friend who had helped my son with issues surrounding executive functioning, my 14 yo son was diagnosed with ADHD, NVLD and depression. The first half of his freshman year has been successful because of him receiving a 504 for the ADHD and with prescription for Adderall, he has been able to receive the support he needs academically. He finished his first semester with a 4.25.
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NVLD NVLD NVLD, by Jen

By Parents Blogs

I emphasize NVLD in the title because I want to make this dx stand out and be recognized. Buried behind the more mainstreamed Special Education services criteria or diagnoses like Autism and Social communication Disorders, or ADHD I am not sure if these 4 letters have sunk into the conscience of enough educators and clinicians so here I am, “again” NVLD, NVLD, NVLD do you hear me, do you see me, can you help me? I feel like those are all of the things my son with this Dx would like to know.
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Entering Adulthood, by Megan

By Parents Blogs

My son was diagnosed with NVLD at 9. We jumped right into educating ourselves with a lot of books and a team of amazing teachers. He had a special Ed teacher help with math and spatial challenges, an occupational therapist who helped with fine motor skills and keyboarding, and a truly amazing SLP who worked with him on social skills. We had several IEP meetings every year with teachers and principals; he had great counselors and, for a time, a psychologist who helped our family understand what he needed from us and how we could work together. It was all going really well until he graduated from high school.
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Tips For Helping My Child, by Jennifer

By Parents Blogs

My son was 10 when he was diagnosed with NVLD. He was also diagnosed with ADHD, OCD and anxiety. He is a million different emotions at one time. He currently sees two therapists and he has the ADHD, OCD and anxiety under control for the most part, but the NVLD is making it very challenging for him to interact with people and understand people. He is now 13 and it is very hard seeing “friends” stop interacting with him. He has a very hard time understanding people’s body language and has a tendency to come off strong with people which makes them turn away from him. I know there has to be other parents out there who are dealing with this so I would love some pointers to help him make healthy relationships with other young adults his age and help him understand people’s responses to him and how he plays a role in a successful friendship. I am at a huge loss and just want him to be happy.

Jennifer

I am a mother of two- one boy and one girl.  I am really just trying to find some support with parents who are dealing with similar issues with their kids.

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Why are there still no specialists treating NVLD?, by Jen

By Parents Blogs

I read many of the posts here and share in your anger and frustration over where we are in 2021. I too, have a 20 yr old daughter diagnosed at 9 yrs old with NVLD. I have submitted questions to The NVLD Project over the years and never really received any helpful information although their heart was in the right place. I have a library of books on NVLD… at least 30. They basically all say the same thing & give the same treatment options:  Social Skills Groups- I agree 100% the importance of social skills training but anxiety co-exists with this disorder and I can tell you from experience the anxiety & panic these GROUPS caused my daughter was counterproductive… & try finding 1-on-1 social skills training… it doesn’t exist.
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Finally, somewhere to turn!, by Esther

By Parents Blogs

My daughter, who is now 22 and a college student, was diagnosed with NVLD at age 9. The testing, which resulted in her diagnosis, was initiated because of concerns over her behavioral and academic challenges. My husband and I did not know what to make of her frequent meltdowns, fears, panic attacks, problems with transitions and difficulties with writing, math and making friends until we were told that she had NVLD. At that time, very few teachers knew or understood NVLD. Although she attended schools that helped her complete elementary and high school, I believe that she is smarter and more capable than the programs that she has had to attend because mainstream schools were too much of a challenge. However, for two years she did successfully attend a public high school and took honors classes, but by junior year the pressure was really intense and she was unable to pass the Algebra I state mandated test.  I then took her out of state to attend a school that specialized in teaching kids with NVLD. School placement has been an incredible struggle!
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