One of the things I am the most proud of was being raised in a family that never lowered expectations for me and always gave me the same opportunities as my sister. Although my sister was a much stronger student, and as a result had more opportunities, we shared many similar experiences which allowed me to have a “never give up” attitude, as I wanted to follow her lead. This led to greater success for me than many people believed was possible. Read More
Growing up with an NVLD I was proud to be in a district that supported students with learning disabilities as it allowed me to be successful, however going after a challenge and taking on new experiences weren’t really promoted which was discouraging as I believe this is so important for maximum success. Read More
I’m Nyx. They’ve known I’ve had learning disabilities since I was 4, but I wasn’t diagnosed with NVLD until I was 16. My disparity is 99th percentile on my left, and 18th percentile on my right, which makes my disability presentation both severe and very rare, according to my psychologist, only 0.02% of people on the planet have a brain with that degree of difference. Life is… interesting. Read More
We’re all born a little fragile. We come into the world as a vulnerable human being unaware of our surroundings. Having NVLD makes me a little more sensitive and hyperaware of the world around me. Growing up as a young child, I was continually criticized for being too “sensitive” which in turn exposed me to raw vulnerability. Read More
More than ever during these crazy times, I have realized how lucky I was to run for you. Since I think daily about how often you looked out for me and how you have also been such great support to my parents too. So many with an NVLD, or similar disabilities, lack this type of relationship in their lives, which helps me appreciate ours even more. Read More
It’s another day at work, and I’m hoping to have a casual conversation with my boss. I’ve been planning this for a few days- I’ve even used my husband as a sounding board- and as I stand outside his office, I run through the checklist we created.
My name is Katie. I am a person with a language impairment and learning disabilities. I was diagnosed at the young age of three. I did not start talking until I was three years old. I did not talk in a complete sentence until I was five years old. I am the only person with a disability in my immediate family.
Living independently for the first time. Moving for a new job. Adapting after trauma. Giving your lifetime “yes” to your spouse at the altar. Saying “goodbye” to a loved one well before her time. Battling a chronic illness. Watching your daughter walk across the stage at his college graduation.
I had finally found a place where it was acceptable to be myself, and this place was my high school, yes, that’s right, my high school. I had just moved with my family and so I started high school as an unknown and that’s just how I liked it.
One of the most important considerations in working with people with disabilities is to give an individualized approach to the person. I had an Individualized Education Plan in my public school years and an Individualized Service Plan beginning in college. I am grateful for the accommodations and specialty instruction that enabled me to be successful in school. I often felt that the services, especially as I grew, were generalized and not customized to what I needed.