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NVLD Bloggers

The Importance of Taking Risks Part A , by Eileen

By NVLD Bloggers

Growing up while overcoming an NVLD, one of the things I noticed was that a large percentage of those with disabilities didn’t take as many risks involving decisions for inclusion in school and life outside of school. While the recommendations they were being offered were good, at times more could have taken place if both families and IEP teams stepped out of their comfort zone to try new methods and experiences. Read More

An Open Letter To Today’s Youth Who Face Gross and Fine Motor Skills Deficits Connected To Their NVLD , Eileen

By Eileen, NVLD Bloggers

To Youth with an NVLD- Growing up facing fine and gross motor skill deficits did bring some confusion as it seemed I was the only one who had these difficulties. Early on it caused me to be so sad when my mom said we needed to leave for OT or when my APE teacher would say things like “Eileen you’re with me today so we can do a music and movement activity that involves jumping, doing jumping jacks and skipping.” Read More

A Prelude to Starting Over , by Justin

By NVLD Bloggers

When I first was diagnosed with NVLD I was 18. I was a senior in high school. Long story short, starting in middle school I often struggled with time on exams and struggled to keep up. This continued through high school although people thought I was smart, my grades didn’t reflect that and because of this I never really liked school and I didn’t think I was all that smart. Read More

Walking the Tightrope , By Malka

By NVLD Bloggers

My observations of a professor-friend about twelve years ago led me quite accidentally to the conclusion that he had Asperger’s Syndrome. After further research on how Asperger’s is expressed in women, I became largely convinced (especially on bad days) that I was similarly afflicted. (This was a few years before the removal of Asperger’s Syndrome from the DSM-5.) Read More

I Eventually Got There…, By Kevin

By NVLD Bloggers

As a young child, looking back, I was different – way ahead of my peers in reading and memorization. But so bad at sport I was sent off the football pitch for upsetting the other players, and I never won at cards or strategic games. As I approached 16, I noticed that my former advantages were becoming disadvantages – my reasoning was really poor, I couldn’t foresee outcomes others saw easily, and the more theoretical maths and logic that my peers could handle easily were impossible. Read More

The Importance of Being in the Regular Classroom Part A, By Eileen

By NVLD Bloggers

While it’s no secret that I am a true believer in full inclusion for secondary-level students with an NVLD and similar disabilities, I don’t agree with it for elementary students. This is because, for the elementary level, true full inclusion means having all your support services in the regular classroom. I believe these students besides needing more direct instruction also need a place just to cool off. That being said I believe these students shouldn’t be leaving the classroom for every service either and it should be limited to 45-60 minutes with the understanding that by the time students reach the secondary level true full inclusion needs to be in place. Read More

“An Open Letter to Explain How It takes A Village To Raise A Child” , By Eileen

By NVLD Bloggers

To Students With An NVLD: Growing up it was hard for me to understand why  I needed a lot of support from my teachers, therapists, and coaches to be successful.  It just didn’t make sense as my sister excelled at everything and things were relatively easy for the friends I had through youth activities. While not all of them were necessarily great students they were strong athletes. So if you are facing self-esteem issues I can completely understand your feelings of hurt having to have all the extra assistance but I believe with growth and maturity you will be very thankful for how much these adults have impacted your life. It truly does take a village to raise a child though often it does take time to see this. Read More

My Hidden Disability, by Kamryn

By NVLD Bloggers

Let’s take this back to when I was 5 years old and in Kindergarten, My teacher informed my parents that she was concerned with my learning and noticed I was having some difficulties – social-wise, learning-wise, spatially. Throughout school, I struggled hard for many years without any firm answers. Teachers told me I was defiant or I just chose not to listen.

But in my head kids are doing things I’m supposed to be able to achieve yet my paper looked like another language, I remember sitting there for hours staring at the paper trying to just be like the average student but it never worked. I couldn’t remember the teacher’s lesson to save my life it was like all of it was erased from my memory the next day. But I could remember someone’s family member or dog it didn’t make sense which is so frustrating.

By the time I was diagnosed with NVLD, I was 21 years old, While this disability is so infuriating it taught me so much I learned that I can adapt and overcome anything, NVLD doesn’t define us it makes us! Who we are! Thank you for listening to my story

Kamryn

My name is Kamryn I’m 29, and I have NVLD and this is my story.

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Advice for NVLD Students : Part B , by Eileen

By NVLD Bloggers

Now to continue from Part A. My next piece of advice is to make sure you are in a  fully inclusive academic environment. This would mean each regular education course would include anywhere from 3-8 students with disabilities. The reason for this is students with an NVLD and similar disabilities need to learn the proper social communication skills. Whether it is making great friendships or being able to always behave appropriately in the classroom the full inclusion setting provides stronger opportunities for this to happen. Also,  the student’s motivation level can greatly increase by being challenged more consistently and having greater personal connections in this setting. Thankfully it seems that many school districts use this setup but it is important to be sure this is taking place. Read More