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Provincial Minds and their Unfortunate Power, by Mikayla

By NVLD Bloggers

My best guy friend is one of the most wonderful people I’ve ever met. He’s smart, kind, caring, and extremely talented in many areas. He plays the piano better than anyone I know, he’s a passionate artist and produces his own music. He can solve a Rubix cube in under a minute, and excels in school. He often puts other people’s needs before his own, and will take the time to get to know the real you and gain your trust. He also has NVLD, which prohibits him from succeeding with fine motor skills, or even some emotional aspects such as empathy or ability to “bounce back” from stressful or upsetting situations. I’m ashamed to admit that I had no knowledge of this disorder before he mentioned it, which led me to wonder how many people actually know about it. Apparently there are lots of misdiagnosis cases, and people often don’t get tested for a learning disorder until they’re much older.
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Finally, somewhere to turn!, by Esther

By Parents Blogs

My daughter, who is now 22 and a college student, was diagnosed with NVLD at age 9. The testing, which resulted in her diagnosis, was initiated because of concerns over her behavioral and academic challenges. My husband and I did not know what to make of her frequent meltdowns, fears, panic attacks, problems with transitions and difficulties with writing, math and making friends until we were told that she had NVLD. At that time, very few teachers knew or understood NVLD. Although she attended schools that helped her complete elementary and high school, I believe that she is smarter and more capable than the programs that she has had to attend because mainstream schools were too much of a challenge. However, for two years she did successfully attend a public high school and took honors classes, but by junior year the pressure was really intense and she was unable to pass the Algebra I state mandated test.  I then took her out of state to attend a school that specialized in teaching kids with NVLD. School placement has been an incredible struggle!
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Raising Gifted and NVLD Children Effectively, by Eileen

By NVLD Bloggers

One of the things I am the most proud of was being raised in a family that never lowered expectations for me and always gave me the same opportunities as my sister. Although my sister was a much stronger student, and as a result had more opportunities, we shared many similar experiences which allowed me to have a “never give up” attitude, as I wanted to follow her lead. This led to greater success for me than many people believed was possible. Read More

Misunderstood, by Jen

By Parents Blogs

A few years ago I submitted a blog to this site. It was shortly after, my son, then 12, was suspected to be diagnosed with NVLD as well as Tourette’s.  At the time I was hopeful that NVLD would soon gain its rightful place in the DSM journal and we would soon be on a path to accessing “proper supports.”
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Disparity, by Nyx

By NVLD Bloggers

Hey all,
I’m Nyx. They’ve known I’ve had learning disabilities since I was 4, but I wasn’t diagnosed with NVLD until I was 16. My disparity is 99th percentile on my left, and 18th percentile on my right, which makes my disability presentation both severe and very rare, according to my psychologist, only 0.02% of people on the planet have a brain with that degree of difference. Life is… interesting. Read More

Finally, NVLD Makes Sense, by Merry

By Parents Blogs

My bright and verbal child started to show rocky behaviors in preschool. He was invited to leave a wonderful nature-based preschool because the owner could not manage his behaviors; we found a challenging and very academic preschool and that worked successfully for the rest of the year until kindergarten. School from that point, was a roller coaster depending on the educator. Read More

Leaning Into My Vulnerability With NVLD, by Megan

By NVLD Bloggers

We’re all born a little fragile. We come into the world as a vulnerable human being unaware of our surroundings. Having NVLD makes me a little more sensitive and hyperaware of the world around me. Growing up as a young child, I was continually criticized for being too “sensitive” which in turn exposed me to raw vulnerability. Read More

An Open Letter to My Cross Country Coach, by Eileen

By NVLD Bloggers

More than ever during these crazy times, I have realized how lucky I was to run for you. Since I think daily about how often you looked out for me and how you have also been such great support to my parents too. So many with an NVLD, or similar disabilities, lack this type of relationship in their lives, which helps me appreciate ours even more. Read More