It all started when I was going to the fifth grade. I transferred to another school for a special education class. I always got bullied for being in special ed up until high school, I didn’t get bullied much. My parents never did anything to stop the bullying. The bullying caused me to become a mean girl because I felt that I had to protect myself from any harm. To this very day, I hate it when people treat me like I’m “stupid, slow”.
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Every so often in my life you join something that is extremely difficult however in the end you are so happy you made the decision to stay with it. I experienced this being the only varsity girl during my first year of cross-country and am grateful for all the personal connections and personal growth I made. Throughout all the challenges each of them turned into a tremendous positive with the help and support I received from my coach Jim Adams, and the members of the Canton cross country team. I was able to see that my disability wasn’t a detriment and realized people respected me for who I am.
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My son was diagnosed with NVLD when he was in the 3rd grade. He is currently a junior in college. We were hoping that college would help his socialization but he seems to becoming more and more isolated. He was involved in a bowling club but has since quit that. He does seem to do well with the academic part of college. He currently works as a part time server at an assisted living center. We worry about his future occupation and working with others as his social skills are very limited. I need resources or assistance on how to best help him with his future. He is such a sweet and kind man but seems to have very little self confidence in himself.
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Over the past couple of years, schools are shifting away from the arts and towards more of the core subjects of math, science, reading, and writing. However, studies are showing parents who dismiss art are depriving children of critical early development. According to recent research by the National Endowment for the Arts, arts such as drawing and painting develop essential social skills, regulate emotional expressions, and improve language and communication among children with autism and nonverbal learning disabilities. If you’re looking to add art to your curriculum or want to encourage some imagination in your child’s life, check out these tips to let the creativity flow in a healthy and positive environment. Read More
Growing up with NVLD can make it extremely difficult to find your interest, as so many things are such a struggle. What many people forget is you can also find your interest in a non-traditional way such as being a fan rather being a participant. Sports are a great example of that. I know when I started sports it was clear it was going to be such a struggle. However, I loved being part of sports teams as I was able to become a fan and enjoy the daily social interactions. This led me to attend and watch multiple professional and college games over the years. It was a big reason why I was able to stay a three-season runner, as I knew how special it was to be part of a team. I was also able to understand my role was to be the strong supporter rather being the one who brings the points.
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Many people with NVLD face a unique challenge in romantic relationships: how to manage their sensory sensitivity. It is documented that some individuals with NVLD may have either an acute or blunted sense of hearing, taste, smell, or touch (Schatz, 2013). The senses can play a role in all stages of romance, from choosing a venue for a first date to deciding on when and how to touch for the first time. For someone with sensory sensitivity, these aspects of dating may be especially anxiety producing; it may also be more difficult for these individuals to develop a deeper level of physical intimacy as a relationship progresses.
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Being told you have NVLD often brings many concerns for your family, as you fear the worst. One of the ways these fears can be minimized is to connect with a family who also has a child with a disability. It may be from a personal connection or joining a support group. It doesn’t need to be NVLD, as each disability, while different, is also very similar as each disability brings daily challenges.
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Dating with NVLD (and its comorbidities) has been difficult for me. I’ve had many failed relationships, and though I’ve had these failures, I still believe someone is out there for me. This is a letter to my future partner about me and my NVLD and how I should be treated.
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I was diagnosed with NVLD at the age of five. My parents noticed a delay when I was extremely speech delayed in speech and when I got to kindergarten, it was evident that something was awry. My kindergarten teacher noted that when everyone was cleaning up after free play, I would just keep on playing and I was extremely oblivious to all my surroundings. My parents then took me in for educational testing and it was then determined that I have NVLD. I was on an IEP until 7th grade when I switched from public to private school. I was consistently bullied for being a “SPED kid” and so my parents moved me to a private school.
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My daughter, Anna, 10, was diagnosed with NLD last year. I had a normal pregnancy and normal delivery. During Anna’s first 4 years of life, she was rather quiet and clingy. I took advantage of the situation and held her all the time, she was like an extension of my own body. She was happy as long as she was with me. She did not enjoy people’s compliments and signs of affection much. She was content ONLY in my presence and when close to me physically.
She took rather long time to start talking in full sentences. She also took a little longer to start walking. Or, in retrospect, it took her longer to venture far from her comfort zones (home, me). She could walk and run and be happy, but rather at home and in my presence.
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