Diagnosed at 5, by Anne

By December 2, 2021 NVLD Bloggers

I was diagnosed with NVLD when I was quite young. A speech therapist I saw figured out I had it from doing social skill classes with her. I first talked at 18 months and had typical autistic traits like creativity and dire interests in history facts even in kindergarten and first grade. Another trait I had at a very young age was love of music and being able to properly sing the ABC’s. That’s when my mother thought about getting me a music teacher and finally started at 8 years old.

I recently met someone in my disability program at college also with NVLD. When I figured out my friend had it I no longer felt alone. I realized for the first time in my life that I could feel understood as a human being. I always thought of her as extremely creative and right brained and I finally figured out why. I think her ADHD is also a positive plus! Her name is Lindsey.


I am an out of state college student that goes to UC. I am proud of my accomplishments in going to college, because a lot of Americans like me 59 years ago never would have had this opportunity of a lifetime. Instead institutions were suggested for those with intellectual and developmental disabilities. Because of this, I’m a disability rights activist. I have been involved with Think College since the Transition Access Program is a part of the national umbrella! The Disability Policy Seminar has taught me even more about self-advocacy in my community. And will continue to do this for the rest of my life!

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