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Adulting with NVLD, by Mercedes

By NVLD Bloggers

I often thought that if I ever wrote my autobiography it would be titled “Trial and Error.” Living in no man’s land, where you are hanging from the autism spectrum line, but not close enough to the Asperger net, was, and still is rough.

I can remember having meltdowns and sensory processing issues. I was very picky about the texture and feel of my clothing. I was still learning how to regulate my emotions and would have frequent meltdowns and anger outbursts. I also spent a lot of time in the hospital and felt like a lab mouse because no one knew what was wrong with me. I had fevers that would come every two weeks and sometimes the fevers would cause me to have seizures. As a child, my parents fought the battle with various teachers, while I was stuck feeling like a freak on display, both in an academic sense and in a social sense.
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The Girl Who Wasn’t Autistic, by Miranda

By NVLD Bloggers

I knew I was different all my life, but I thought that was a good thing, as that was the message “Dragon Tales” gave to me. I actually have traits of several disorders, but the thing that affected me most harshly was the fact that I prioritized verbal messages above all else. It was okay to “be myself” even if that meant picking my nose (a trait of repetitive behavior disorder, formerly thought of as OCD). My babysitter said it was “okay to cry” so I cried loudly in front of my classmates despite my teacher telling me I was embarrassing myself. When I was finally put in social skills training. I kept asking the speech therapists repeatedly what to do in specific situations and their answers were perennially vague. Due to my difficulties with timing and attention, I never mastered social skills in a group setting, and possibly never will.
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Is Homeschooling Right For You? The Pros and Cons of Taking Your Child Out of the Conventional Classroom, by Sally

By Parents Blogs

It is assumed that every child must go to school in order to maximize their ability to learn and make friends. However, rules such as these do not include every type of child. For some children, especially those with a learning disability such as NVLD, school can be an incredibly stressful and emotional experience where no one really understands them or their needs. Indeed, this can quickly lead to social exclusion, bullying, and a lack of care from over worked teachers. If this sounds familiar, then it may be worth considering homeschooling your child. After all, you know how they tick more than anyone else.
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The Outcast, by Iris

By NVLD Bloggers

When I was little, the Drs thought I had A.D.H.D but could not figure out why it was so severe. Kids made fun of me, I ran into everything and I did not understand social constructs at all. Finally I was diagnosed with NVLD. It is now 20 years later, and I still struggle, but having a name for the disorder, and people who help and understand makes all the difference!
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The Right Summer Camp Can Make A World Of Difference To Children With NVLD, by Debbie & Eric Sasson

By Experts Blog

Life can be very lonely when it feels like people don’t “get” you.  Our campers tell us that camp gives them an opportunity to be a part of something bigger, to be a member of a community where people understand them and appreciate them for who they are.  Many people find it hard to imagine that summer camp can provide more than a few weeks of fun activities.  And yet, camp is so much more.  Residential camp gives children an opportunity to meet peers who have similar interests and experiences, but also to be more independent, to learn resiliency, to feel a sense of agency.
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The Struggle of NVLD and the MN Education System, by Amanda

By Parents Blogs

My daughter Lexus has Nonverbal Learning Disorder. The fight I have been facing is with our school districts and trying to make them understand what NVLD is. I have been fighting this battle since my daughter was in 1st grade and have been blown off and disrespected by many in the school system. People don’t understand how severe NVLD is to a child who goes to school and it’s time that Nonverbal Learning Disorder is a recognized learning disability.
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Anything is Possible with Perseverance, by Andrea

By NVLD Bloggers

Telling someone I’m on the spectrum is difficult, but things become even more complicated when you’re a speech-language pathologist. I knew from a small age that I was different from my peers but no clue that I had a learning disability that affected me socially, academically, physically, and emotionally.

Until recently I had never heard of Non-Verbal Learning Disability, and I have been a practicing speech-language pathologist since October of 2014. It presents very similarly to Aspergers but is different in several ways. For instance, I’m an auditory learner and struggle with fine/gross motor impairments, while many Aspies are visual learners and often do not present with as many fine and gross impairments.
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A Tribute to My Son – Zak 11/22/89, Rebirthed on 5/2/2017, by Sharon

By Parents Blogs

On May 2, 2017, at age 27, my son Zak (Zachary) Anthony chose to no longer live with the pressures, NVLD or what we called NLD created for him in this world. A silent disability, where schools, doctors, and most psychiatrists have never even heard of, or even want to investigate or research or even try to understand. We would have to explain it to them, or in fact, beg them to even consider it a possibility or even listen to us! If it was not in their school specs, then it did not exist! Therefore there was never any help for my child here in the state of Ohio! Still even here in December, 2017, at the State Mental institution, where my son got placed on suicide watch. Not one Doctor, therapist or nurse ever heard about this disability, nor would they take the time to learn the easy ways of how to communicate with my son, while in there! We suffered through it alone. We couldn’t even find a psychiatrist, who understood it to even offer him a proper diagnosis! All we got was oh, what’s that, hmmm I’ll have to look it up (which no one ever did!) or oh well, it must be Autism, or he’s just fooling you, he’s just a smart-ass! How can he score 2nd-grade college level in 6th grade but, can’t organize his notebook, he’s just lazy! Time after time, my son was humiliated, due to the lack of understanding or their not wanting to understand!
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