Growing up with an NVLD I was proud to be in a district that supported students with learning disabilities as it allowed me to be successful, however going after a challenge and taking on new experiences weren’t really promoted which was discouraging as I believe this is so important for maximum success. Read More
A few years ago I submitted a blog to this site. It was shortly after, my son, then 12, was suspected to be diagnosed with NVLD as well as Tourette’s. At the time I was hopeful that NVLD would soon gain its rightful place in the DSM journal and we would soon be on a path to accessing “proper supports.”
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Hey all,
I’m Nyx. They’ve known I’ve had learning disabilities since I was 4, but I wasn’t diagnosed with NVLD until I was 16. My disparity is 99th percentile on my left, and 18th percentile on my right, which makes my disability presentation both severe and very rare, according to my psychologist, only 0.02% of people on the planet have a brain with that degree of difference. Life is… interesting. Read More
My bright and verbal child started to show rocky behaviors in preschool. He was invited to leave a wonderful nature-based preschool because the owner could not manage his behaviors; we found a challenging and very academic preschool and that worked successfully for the rest of the year until kindergarten. School from that point, was a roller coaster depending on the educator. Read More
We’re all born a little fragile. We come into the world as a vulnerable human being unaware of our surroundings. Having NVLD makes me a little more sensitive and hyperaware of the world around me. Growing up as a young child, I was continually criticized for being too “sensitive” which in turn exposed me to raw vulnerability. Read More
More than ever during these crazy times, I have realized how lucky I was to run for you. Since I think daily about how often you looked out for me and how you have also been such great support to my parents too. So many with an NVLD, or similar disabilities, lack this type of relationship in their lives, which helps me appreciate ours even more. Read More
It’s another day at work, and I’m hoping to have a casual conversation with my boss. I’ve been planning this for a few days- I’ve even used my husband as a sounding board- and as I stand outside his office, I run through the checklist we created.
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My name is Katie. I am a person with a language impairment and learning disabilities. I was diagnosed at the young age of three. I did not start talking until I was three years old. I did not talk in a complete sentence until I was five years old. I am the only person with a disability in my immediate family.
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Living independently for the first time. Moving for a new job. Adapting after trauma. Giving your lifetime “yes” to your spouse at the altar. Saying “goodbye” to a loved one well before her time. Battling a chronic illness. Watching your daughter walk across the stage at his college graduation.
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I had finally found a place where it was acceptable to be myself, and this place was my high school, yes, that’s right, my high school. I had just moved with my family and so I started high school as an unknown and that’s just how I liked it.
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