My story starts at the age of 18 months (, or so I’m told. ) It centers around a rocking horse that my cousin gave me for Christmas one year! I loved that rocking horse but I just couldn’t figure out how to maneuver to get on it. This is where my mom said that there was a problem and got me in to see my pediatrician. They didn’t know anything about NVLD in 1993 and they said it was a disability, motor issues otherwise not specified.
As a 32-year-old adult, I think this is a diagnosis that doesn’t help me in life. I have identified with NVLD all my life and have had trouble holding a job for years now. I still live with my parents. NVLD does affect my ability as an adult and I believe that people need to realize that our struggles are indeed real.
The fact that the ADA doesn’t protect people with NVLD is a disgrace to our community! We are people but sometimes we need help and accommodations, even as adults. Why shouldn’t I be able to live my best life? I understand that life is not always fair on this earth but I believe we really need more help as humans who have this. This disability sometimes makes life more difficult. I do love to write and I empower myself when I educate people on NVLD. I would like to get us in the DSM-5 because I believe it would help us live better lives as humans.
Michelle
I am a 32-year-old still living my life in Ct with my parents.
