My daughter Lexus has Nonverbal Learning Disorder. The fight I have been facing is with our school districts and trying to make them understand what NVLD is. I have been fighting this battle since my daughter was in 1st grade and have been blown off and disrespected by many in the school system. People don’t understand how severe NVLD is to a child who goes to school and it’s time that Nonverbal Learning Disorder is a recognized learning disability. Read More
Until recently I had never heard of Non-Verbal Learning Disability, and I have been a practicing speech-language pathologist since October of 2014. It presents very similarly to Aspergers but is different in several ways. For instance, I’m an auditory learner and struggle with fine/gross motor impairments, while many Aspies are visual learners and often do not present with as many fine and gross impairments.
On May 2, 2017, at age 27, my son Zak (Zachary) Anthony Jones chose to no longer live with the pressures, NVLD or what we called NLD created for him in this world. A silent disability, where schools, doctors, and most psychiatrists have never even heard of, or even want to investigate or research or even try to understand. We would have to explain it to them, or in fact, beg them to even consider it a possibility or even listen to us! If it was not in their school specs, then it did not exist! Therefore there was never any help for my child here in the state of Ohio! Still even here in December, 2017, at the State Mental institution, where my son got placed on suicide watch. Not one Doctor, therapist or nurse ever heard about this disability, nor would they take the time to learn the easy ways of how to communicate with my son, while in there! We suffered through it alone. We couldn’t even find a psychiatrist, who understood it to even offer him a proper diagnosis! All we got was oh, what’s that, hmmm I’ll have to look it up (which no one ever did!) or oh well, it must be Autism, or he’s just fooling you, he’s just a smart-ass! How can he score 2nd-grade college level in 6th grade but, can’t organize his notebook, he’s just lazy! Time after time, my son was humiliated, due to the lack of understanding or their not wanting to understand!
Had I known as a child that I’d grow up to be a published author, it would’ve provided me with comfort and reassurance in the face of trying times. It wasn’t easy growing up with an undiagnosed learning disability. Despite endless efforts, in school I remained brilliant in some academic areas, like reading and spelling, and highly challenged in math and science, puzzling and frustrating my teachers and family. Read More
Our journey with NVLD began 18 years ago, but we didn’t know it until Katie was in eighth grade. We knew Katie was different. When Katie was a toddler, she threw tantrums like a hellcat. No amount of coaxing, cajoling or threatening would make Katie change her mind about anything. As she grew, we didn’t know why she refused–vehemently–to do seemingly ordinary things, like ride a bike. She said she just wouldn’t. We believed we had a very obstinate child.